Barriers to education and shared decision making in the chronic kidney disease population: a narrative review

BP Cassidy, LE Getchell, L Harwood… - Canadian journal of …, 2018 - journals.sagepub.com
Purpose of review: Provision of education to inform decision making for renal replacement
therapy (RRT) is a key component in the management of chronic kidney disease (CKD), yet …

[HTML][HTML] Co-building a patient-oriented research curriculum in Canada

T Bell, LE Vat, C McGavin, M Keller, L Getchell… - Research Involvement …, 2019 - Springer
Plain English summary Foundations in Patient-Oriented Research is a course designed and
piloted in Canada to help patients, researchers, health care professionals and health …

Educational support around dialysis modality decision making in patients with chronic kidney disease: qualitative study

BP Cassidy, L Harwood, LE Getchell… - Canadian journal of …, 2018 - journals.sagepub.com
Background: Patients with chronic kidney disease (CKD) are asked to choose a renal
replacement therapy or conservative management. Education and knowledge transfer play key …

Increasing the rate of living donor kidney transplantation in Ontario: donor-and recipient-identified barriers and solutions

LE Getchell, SQ McKenzie, JM Sontrop… - Canadian journal of …, 2017 - journals.sagepub.com
Purpose of Review: To hear from living kidney donors and recipients about what they perceive
are the barriers to living donor kidney transplantation, and how patients can develop and …

The dynamic nature of patient engagement within a Canadian patient‐oriented kidney health research network: Perspectives of researchers and patient partners

…, K Schick‐Makaroff, L Getchell… - Health …, 2023 - Wiley Online Library
Leah Getchell assisted with participant recruitment, data collection during focus groups
and interpretation of findings. Braden Manns contributed to the study design and provided …

A quality improvement intervention to enhance access to kidney transplantation and living kidney donation (EnAKT LKD) in patients with chronic kidney disease …

…, SN Dixon, L Elliott, L Getchell… - … Journal of Kidney …, 2021 - journals.sagepub.com
Background: Many patients with kidney failure will live longer and healthier lives if they receive
a kidney transplant rather than dialysis. However, multiple barriers prevent patients from …

[HTML][HTML] Storytelling for impact: the creation of a storytelling program for patient partners in research

LE Getchell, M Reich, S Allu, C Woods… - Research Involvement …, 2023 - Springer
Storytelling is a powerful means to evoke empathy and understanding among people. When
patient partners, which include patients, family members, caregivers and organ donors, …

Program report: Can-SOLVE CKD Network presents an inclusive method for developing patient-oriented research tools

LE Getchell, E Fowler, M Reich, S Allu… - … Journal of Kidney …, 2022 - journals.sagepub.com
Purpose of program: Given the growing interest in patient-oriented research (POR) initiatives,
there is a need to provide relevant training and education on how to engage with patients …

Effect of a novel multicomponent intervention to improve patient access to kidney transplant and living kidney donation: The EnAKT LKD cluster randomized clinical …

…, C Coghlan, R Cooper, L Elliott, L Getchell… - JAMA Internal …, 2023 - jamanetwork.com
Importance Patients with advanced chronic kidney disease (CKD) have the best chance for a
longer and healthier life if they receive a kidney transplant. However, many barriers prevent …

[HTML][HTML] A RAND-modified Delphi on key indicators to measure the efficiency of living kidney donor candidate evaluations

…, C Dipchand, J Gill, L Getchell… - Clinical Journal of the …, 2020 - journals.lww.com
Results We identified 16 process indicators (eg, average time to evaluate a donor candidate),
eight outcome indicators (eg, annual number of preemptive living kidney donor transplants)…