Developing a program theory of patient engagement in patient-oriented research and the impacts on the health care system: protocol for a rapid realist review

E Zibrowski, S McDonald, H Thiessen… - … Open Access Journal, 2020 - cmajopen.ca
Background: The patient-oriented research (POR) discourse has been criticized as being
fragmented, lacking consistent terminology and having few evaluative studies. Our research …

A rapid realist review of patient engagement in patient-oriented research and health care system impacts: part one

E Zibrowski, T Carr, S McDonald, H Thiessen… - Research Involvement …, 2021 - Springer
Background Patient-oriented research affords individuals with opportunities to genuinely
contribute to health care research as members of research teams. While checklists and …

Building meaningful patient engagement in research: case study from ADVANCE clinical data research network

NT Warren, JA Gaudino Jr, S Likumahuwa-Ackman… - Medical care, 2018 - journals.lww.com
Background: Strategies to engage patients to improve and enhance research and clinical
care are increasingly being implemented in the United States, yet little is known about best …

Sharing experiences and expertise: the Health Care Systems Research Network workshop on patient engagement in research

S Madrid, L Tuzzio, CD Stults… - Journal of Patient …, 2016 - institutionalrepository.aah.org
Abstract The Health Care Systems Research Network's (HCSRN) Patient Engagement in
Research Scientific Interest Group (PER SIG) held a half-day workshop for researchers …

Patient-identified priorities for successful partnerships in patient-oriented research

MJ Santana, DA Duquette, P Fairie, I Nielssen… - Research involvement …, 2022 - Springer
Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research
Patient Engagement Team, hosted a virtual round table discussion to develop a list of …

Operationalizing a patient engagement plan for health research: sharing a codesigned planning template from a national clinical trial

H Etchegary, A Pike, AM Patey, E Gionet… - Health …, 2022 - Wiley Online Library
Introduction Engaging with patients about their lived experience of health and illness and
their experience within the healthcare system can help inform the provision of care, health …

Models and frameworks of patient engagement in health services research: a scoping review protocol

AM Chudyk, C Waldman, T Horrill, L Demczuk… - Research involvement …, 2018 - Springer
Plain English summary Patient engagement in research is an emerging approach that
involves active and meaningful collaboration between researchers and patients throughout …

Future directions for patient engagement in research: a participatory workshop with Canadian patient partners and academic researchers

AM Chudyk, R Stoddard, TA Duhamel… - Health Research Policy …, 2024 - Springer
Background Patient engagement in research (also commonly referred to as patient or
patient and public involvement in research) strives to transform health research wherein …

[HTML][HTML] Measuring the impact of patient-engaged research: how a methods workshop identified critical outcomes of research engagement

EC Dillon, L Tuzzio, S Madrid, H Olden… - Journal of Patient …, 2017 - ncbi.nlm.nih.gov
Purpose While strategies to evaluate the influence of engaging patient partners in research,
such as the Patient-Centered Outcomes Research Institute (PCORI) WE-ENACT surveys …

The impact of patient engagement on trials and trialists in Ontario, Canada: An interview study with IMPACT awardees

SG Nicholls, G Fox, Z Monfaredi, E Poole… - Research Involvement …, 2022 - Springer
Background A key component of patient-oriented research is the engagement of patients as
partners in the design and conduct of health research. While there is now national …