Special ReportResearch Priorities in CKD: Report of a National Workshop Conducted in Australia
Section snippets
Context
Australia is among the world’s 20 largest economies, with a gross domestic product of approximately US $1 trillion. In the Australian health care system, some services are funded by the government and others are funded by private health insurance. Medicare is the Australian government’s universal health insurance scheme and provides free or subsidized treatment to patients in public hospitals. Costs of dialysis and kidney transplantation are covered by Medicare. However, patients may choose to
Discussion
An Australian priority-setting partnership involving patients, caregivers, policy makers, clinicians, and researchers was convened in February 2014 to elicit shared research priorities for CKD. Priorities were focused on prevention, lifestyle, quality of life, and long-term impact of disease and treatment. For stages 1 to 5 CKD (non–dialysis dependent), the prioritized questions were centered on lifestyle interventions to prevent disease progression, education to improve self-management and
Conclusion
Priority-setting partnerships provide an opportunity for participative democratic approaches to research question generation44 and for wide stakeholder engagement to explore and identify research priorities. Prioritized research questions can inform patient/consumer organizations, researchers, policy makers, and funding agencies in developing a shared CKD research agenda that is relevant to all stakeholders.
Acknowledgements
A full list of those involved in the priority-setting partnership workshop follows. Guests: Prof Chris Baggoley (Chief Medical Officer, Australian Government) and Dr Davina Ghersi (National Health and Medical Research Council). Participants: Adam Martin, Alan Cass, Amber Eggersdorff, Balaji Hiremagalur, Barbara Swift, Bill Handke, Carmel Hawley, Carol Pollock, Cheryl Hyde, Cynthia Morisey, Daniel Ussher, Daniella Dickenson, Dianna Fornasier, Fabian Marsden, Filomena Diaz, Gary Goodship,
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