ArticleSpecial Focus on Child HealthHealth care transition for adolescents with special healthcare needs: Where is nursing?
Section snippets
Early Developments
The concept of healthcare transition originated nearly two decades ago as a proposed service enhancement for the first generation of ASHCN. Their life expectancies exceeded previous generations of those born with childhood chronic conditions for whom life-sustaining treatments did not exist. Conceiving what had been the inconceivable was a challenge as survivorship had been a prognostic hope, not yet a reality. The capacity of the child healthcare system was ill equipped and not yet prepared to
Recommendations
The position statements on the scope of healthcare transition practice that are predicated upon an interdisciplinary framework of care would be strengthened by more accurately reflecting the service alignment and involvement of interdisciplinary team members. Of note, none of the position statements issued by AAP, SAM, or the consensus groups included representatives from pediatric nursing or other interdisciplinary organizations. In two instances, recognized nursing experts were invited to
Service Model Characteristics
Healthcare transition, although recognized as a salient service component for ASHCN over the past two decades, remains a field of practice and research that is seeking direction. Researchers and clinical experts are exploring ways to develop and implement healthcare transition services that will facilitate ASHCN acquisition of goals for the future, including becoming competent managers of their own care and becoming consumers of health services.
Evidence-based approaches to provide healthcare
Conclusion
Healthcare transition, although acknowledged as a service need for the past two decades, has yet to become a service reality. Few exemplary and evidence-based models of healthcare transition exist that have been sustained with revenue generated from the services provided. The body of research to inform practitioners of evidence-based practices is scant.
As discussed in this paper, the field of healthcare transition has been largely influenced by the medical community. The medical community has
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