Characteristics of participants
| Characteristic | Phase of study; no. (%) of participants | ||
|---|---|---|---|
| Initial survey n = 185* | Interim prioritization n = 25 | Final meeting n = 20 | |
| Type of participant | |||
| Patient | 44 (45) | 13 (52) | 10 (50) |
| Caregiver | 16 (16) | 2 (8) | 3 (15) |
| Advocacy group member | 7 (7) | 3 (12) | 2§ |
| Other | 5 (5) | 0 | |
| Health professional | 26 (27) | 7 (28) | 7 (35) |
| Nurse | 12 (46) | 2 (29) | 2 (29) |
| Surgeon | 1 (4) | 0 | 0 |
| Medical oncologist | 6 (23) | 3 (43) | 5 (71) |
| Radiation oncologist | 1 (4) | 0 | 0 |
| Pharmacist | 1 (4) | 0 | 0 |
| Other | 5 (19) | 2 (29) | 0 |
| Age, yr | |||
| 18–29 | 4 (4) | 1 (4) | 0 |
| 30–39 | 7 (7) | 0 | 4 (20) |
| 40–49 | 19 (19) | 3 (12) | 6 (30) |
| 50–59 | 29 (30) | 9 (36) | 8 (40) |
| 60–69 | 27 (28) | 9 (36) | 1 (5) |
| 70–79 | 11 (11) | 0 | 1 (5) |
| ≥ 80 | 1 (1) | 2 (8) | 0 |
| Prefer not to say | 0 | 1 (4) | 0 |
| Sex | |||
| Male | 39 (40) | 9 (36) | 8 (40) |
| Female | 59 (60) | 16 (64) | 12 (60) |
| Ethnicity | |||
| White | 93 (95) | 23 (92) | 17 (85) |
| South Asian | 2 (2) | 1 (4) | 3 (15) |
| Mixed | 1 (1) | 0 | |
| Prefer not to say | 2 (2) | 1 (4) | 0 |
| Colorectal cancer stage | n = 44 | n = 13 | n = 10 |
| I | 9 (20) | 0 | 0 |
| II | 8 (18) | 4 (31) | 3 (30) |
| III | 27 (61) | 8 (62) | 6 (60) |
| IV | 0 | 1 (8) | 1 (10) |
| Time since diagnosis, yr | |||
| 1–5 | 26 (59) | 7 (54) | 3 (30) |
| 5–10 | 12 (27) | 4 (31) | 5 (50) |
| > 10 | 6 (14) | 2 (15) | 2 (20) |
| Place of residence | n = 98 | n = 25 | n = 20 |
| British Columbia | 6 (6) | 0 | 1 (5) |
| Alberta | 46 (47) | 16 (64) | 10 (50) |
| Saskatchewan | 3 (3) | 0 | 0 |
| Manitoba | 11 (11) | 0 | 0 |
| Ontario | 21 (21) | 4 (16) | 5 (25) |
| Quebec | 5 (5) | 5 (20) | 3 (15) |
| Atlantic† | 6 (6) | 0 | 1 (5) |
| Rural‡ | 10 (11) | 5 (20) | 3 (15) |
| Urban‡ | 61 (62) | 20 (80) | 17 (85) |
| Rurality data missing | 27 (28) | 0 | 0 |
↵* Only 98 participants provided demographic information.
↵† The Atlantic region consists of Prince Edward Island, Nova Scotia, Newfoundland and Labrador, and New Brunswick.
↵‡ Rural was defined as not urban. Urban was defined as core population density of 1000 people per square mile and population density of surrounding area of 500 people per square mile (1 mi2 = 2.6 km2).
↵§ Advocacy group members at the final meeting were also patients with colorectal cancer.