Demographic characteristics of online survey respondents
| Characteristic | No. (%) of respondents* | |
|---|---|---|
| Patients n = 38 | Nonpatients n = 21 | |
| Age, yr, mean ± SD | 38 ± 8 | 46 ± 9† |
| Sex | ||
| Female | 34 (89) | 16 (76) |
| Male | 4 (11) | 5 (24) |
| Category | ||
| Parent | 24 (63) | NA |
| Parent and survivor | 2 (5) | NA |
| Survivor | 8 (21) | NA |
| Parent and spouse of survivor | 2 (5) | NA |
| Family | 1 (3) | NA |
| Unaffected RB1 mutation carrier and parent | 1 (3) | NA |
| Clinician | NA | 16 (76) |
| Ophthalmologist | NA | 5 (24) |
| Oncologist | NA | 4 (19) |
| Genetic counsellor | NA | 3 (14) |
| Child life specialist | NA | 2 (10) |
| Molecular geneticist | NA | 1 (5) |
| Social worker | NA | 1 (5) |
| Clinician-scientist | NA | 3 (14) |
| Ophthalmologist | NA | 2 (10) |
| Medical geneticist | NA | 1 (5) |
| Researcher | NA | 2 (10) |
| Laterality | ||
| Bilateral | 26 (68) | NA |
| Unilateral | 11 (29) | NA |
| Not provided | 1 (3) | NA |
| Place of residence | ||
| Ontario | 22 (58) | 12 (57) |
| Alberta | 11 (29) | 2 (10) |
| New Brunswick | 1 (3) | 0 (0) |
| Quebec | 1 (3) | 3 (14) |
| Nova Scotia | 0 (0) | 2 (10) |
| Not provided | 3 (8) | 2 (10) |