Demographic characteristics of the Canadian Retinoblastoma Research Advisory Board working group, Priority Setting Steering Committee and workshop participants
| Characteristic | Group; no. (%) of participants | |||||
|---|---|---|---|---|---|---|
| Working group | Steering committee | Workshop | ||||
| Patients n = 1 | Nonpatients n = 9 | Patients n = 4 | Nonpatients n = 11 | Patients n = 10 | Nonpatients n = 10 | |
| Sex | ||||||
| Male | 0 (0) | 1 (11) | 0 (0) | 3 (27) | 1 (10) | 3 (30) |
| Female | 1 (100) | 8 (89) | 4 (100) | 8 (73) | 9 (90) | 7 (70) |
| Category | ||||||
| Parent | 0 (0) | NA | 2 (50) | NA | 6 (60) | NA |
| Survivor | 1 (100) | NA | 2 (50) | NA | 4 (40) | NA |
| Clinician | NA | 3 (33) | NA | 4 (36) | NA | 3 (30) |
| Genetic counsellor | NA | 2 (22) | NA | 2 (18) | NA | 0 (0) |
| Child life specialist | NA | 0 (0) | NA | 2 (18) | NA | 0 (0) |
| Nurse | NA | 0 (0) | NA | 0 (0) | NA | 1 (10) |
| Ophthalmic imaging specialist | NA | 1 (11) | NA | 0 (0) | NA | 1 (10) |
| Ophthalmologist | NA | 0 (0) | NA | 0 (0) | NA | 1 (10) |
| Clinician-scientist | NA | 1 (11) | NA | 3 (27) | NA | 1 (10) |
| Ophthalmologist | NA | 1 (11) | NA | 2 (18) | NA | 1 (10) |
| Oncologist | NA | 0 (0) | NA | 1 (9) | NA | 0 (0) |
| Researcher | NA | 1 (11) | NA | 2 (18) | NA | 4 (40) |
| Trainee | NA | 4 (44) | NA | 2 (18) | NA | 2 (20) |
| Place of residence | ||||||
| Ontario | 0 (0) | 8 (89) | 2 (50) | 8 (73) | 6 (60) | 8 (80) |
| Alberta | 0 (0) | 1 (11) | 1 (25) | 2 (18) | 3 (30) | 1 (10) |
| British Columbia | 0 (0) | 0 (0) | 0 (0) | 1 (9) | 0 (0) | 1 (10) |
| Other | 1 (100) | 0 (0) | 1 (25) | 0 (0) | 1 (10) | 0 (0) |
Note: NA = not applicable.