Telephone follow-up assessment in the 2 groups
| Item | Group; no. (%) of patients | p value | ||
|---|---|---|---|---|
| Intervention n = 64 | Usual care n = 55 | Overall n = 119 | ||
| Preferences on follow-up | 0.4 | |||
| Use machines and all possible measures including resuscitation (CPR) with a focus on keeping me alive at all costs | 10 (15.6) | 16 (29.1) | 26 (21.8) | |
| Use machines and all possible measures with a focus on keeping me alive, but if my heart stops, no resuscitation (CPR) | 5 (7.8) | 2 (3.6) | 7 (5.9) | |
| Use machines only in the short term to see if I will get better, but if the illness is prolonged, change focus to comfort measures only; if my heart stops, no resuscitation (CPR) | 29 (45.3) | 19 (34.5) | 48 (40.3) | |
| Use full medical care to prolong my life, but if my heart or my breathing stops, no resuscitation (CPR) or breathing machines | 6 (9.4) | 5 (9.1) | 11 (9.2) | |
| Use comfort measures only with a focus on improving my quality of life and comfort; allow natural death, and no artificial prolongation of life and no resuscitation (CPR) | 11 (17.2) | 10 (18.2) | 21 (17.6) | |
| Unsure | 2 (3.1) | 0 (0.0) | 2 (1.7) | |
| Missing | 1 (1.6) | 3 (5.4) | 4 (3.4) | |
| Completeness of GCD in patient’s Green Sleeve* | 0.47 | |||
| Completed | 61 (95.3) | 50 (90.9) | 111 (93.3) | |
| Not completed | 3 (4.7) | 5 (9.1) | 8 (6.7) | |
| Goal of care on (GCD) form in your Green Sleeve* from telephone assessment | 0.03 | |||
| Intensive care including CPR | 22 (34.4) | 33 (60.0) | 55 (46.2) | |
| Intensive care excluding CPR | 21 (32.8) | 10 (18.2) | 31 (26.0) | |
| Intensive care excluding CPR and intubation | 7 (10.9) | 4 (7.3) | 11 (9.2) | |
| Medical care | 8 (12.5) | 3 (5.4) | 11 (9.2) | |
| Comfort care only | 3 (4.7) | 0 (0.0) | 3 (2.5) | |
| Do not know | 1 (1.6) | 2 (3.6) | 3 (2.5) | |
| Did not do | 1 (1.6) | 0 (0.0) | 1 (0.8) | |
| Missing | 1 (1.6) | 3 (5.4) | 4 (3.4) | |
| Overall, how satisfied were you with the material presented to you by the GCD navigator or research nurse? | – | |||
| Slightly dissatisfied | 2 (3.1) | – | – | |
| Slightly satisfied | 2 (3.1) | – | – | |
| Moderately satisfied | 13 (20.3) | – | – | |
| Very satisfied | 46 (71.9) | – | – | |
| Missing/declined | 1 (1.6) | – | – | |
| How likely are you to recommend this program to others? | – | |||
| Probably would not recommend | 1 (1.6) | – | – | |
| Might recommend | 3 (4.7) | – | – | |
| Probably would recommend | 14 (21.9) | – | – | |
| Definitely would recommend | 41 (64.1) | – | – | |
| Missing/declined | 5 (7.8) | – | – | |
Note: CPR = cardiopulmonary resuscitation, GCD = Goals of Care Determination.
↵* A plastic pocket that holds important documents for advance care planning and other forms that outline a patient’s goals for care. It is given to patients who have had discussions or completed documents that refer to decision-making about their current or future care.