Participant demographic characteristics
| Characteristic | No. (%) of participants* | ||
|---|---|---|---|
| Patients n = 18 | Caregivers n = 7 | Health care providers n = 5 | |
| Gender | |||
| Female | 10 (56) | 6 (86) | 5 (100) |
| Male | 8 (44) | 1 (14) | 0 (0) |
| Age category, yr | |||
| 20–30 | 0 (0) | 1 (14) | 1 (20) |
| 31–40 | 2 (11) | 0 (0) | 1 (20) |
| 41–50 | 3 (17) | 2 (29) | 2 (40) |
| 51–60 | 5 (28) | 1 (14) | 0 (0) |
| 61–70 | 4 (22) | 2 (29) | 1 (20) |
| 71–80 | 1 (6) | 0 (0) | 0 (0) |
| 81–90 | 3 (17) | 0 (0) | 0 (0) |
| Not disclosed | 0 (0) | 1 (14) | |
| Age, yr, mean | 60.5 | 50.8 | 43.6 |
| Highest level of education | |||
| High school | 2 (11) | 1 (14) | 0 (0) |
| College/university | 13 (72) | 4 (57) | 2 (40) |
| Master’s degree/ doctorate | 3 (17) | 1 (14) | 3 (60) |
| Not disclosed | 0 (0) | 1 (14) | |
| Ethnicity | |||
| White | 11 (61) | 4 (57) | 2 (40) |
| Black | 1 (6) | 0 (0) | 1 (20) |
| Asian | 3 (17) | 1 (14) | 1 (20) |
| Middle Eastern | 1 (6) | 0 (0) | 0 (0) |
| Central American | 0 (0) | 1 (14) | 0 (0) |
| European | 2 (11) | 1 (14) | 1 (20) |
| Type of health care provider | |||
| Neurosurgery resident | – | – | 1 (20) |
| Medical administrative assistant | – | – | 1 (20) |
| Nurse practitioner | – | – | 1 (20) |
| Physiotherapist | – | – | 1 (20) |
| International medical graduate | – | – | 1 (20) |
↵* Except where noted otherwise.