Table 3:

Evaluation of patient engagement after the priority-setting workshop*

ItemMean score ± SD (range)
Communications and supports for participation
I had a clear understanding of the purpose of the #PartneringForPain research-priority–setting workshop4.53 ± 0.51 (4–5)
The supports I needed to participate were available (e.g., travel, child care)4.68 ± 0.58 (3–5)
I had enough information to contribute to the topic being discussed4.53 ± 0.61 (4–5)
Views and perspectives
I was able to express my views freely4.84 ± 0.37 (4–5)
I feel that my views were heard4.74 ± 0.56 (3–5)
A wide range of views on the topics discussed was discussed4.79 ± 0.42 (4–5)
The individuals participating in the #PartneringForPain research-priority–setting workshop represented a broad range of perspectives on the topic4.79 ± 0.42 (4–5)
I feel confident that the final list of top research priorities identified during the #PartneringForPain workshop reflects what matters most to people with lived experienced with chronic pain as a child or teen, their family members and treating clinicians4.53 ± 0.61 (3–5)
I feel that my views are reflected in the final list of top research priorities identified during the workshop4.53 ± 0.61 (3–5)
Impacts and influence of engagement initiative
I think the #PartneringForPain research-priority–setting workshop achieved its objective4.74 ± 0.45 (4–5)
I am confident the input provided through this initiative will be used by the #PartneringForPain project team4.79 ± 0.42 (4–5)
I think the input provided through this activity will make a difference to the work of the #PartneringForPain project4.74 ± 0.45 (4–5)
I am confident the input provided through this activity will direct future research about chronic pain in children and teens in Canada4.47 ± 0.51 (4–5)
Final thoughts
As a result of my participation in the #PartneringForPain workshop, I am better informed about what questions people with lived experience with chronic pain as a child or teen, their family members and treating clinicians have about treating pediatric chronic pain in Canada4.63 ± 0.50 (4–5)
Overall, I was satisfied with this engagement initiative4.74 ± 0.45 (4–5)
This engagement initiative was a good use of my time4.68 ± 0.48 (4–5)
Open-ended questions
What else would you like us to know about how your participation in the #PartneringForPain workshop was supported?
  • Appealing hotel, venue and food

  • Well organized and planned

  • Facilitators welcoming and created space for respectful communication

  • Collaborative and open environment

What else would you like us to know about how you were able to share your views?
  • Respectful environment allowing everyone to be heard and facilitating compromise

  • Small group increased comfort

  • Share more details before workshop on earlier-phase results

What else would you like us to know about the influence you think the #PartneringForPain workshop will have?
  • Hopeful that identified priorities will be acted on

  • Desire to know future impact of the results

  • Desire for greater political and funding influence

  • Belief in credibility of final priorities based on substantive and authentic engagement of multiple stakeholders

What were the strengths of the #PartneringForPain workshop?
  • Open, warm and welcoming

  • Diversity and representation of participants

  • Respectful, collaborative and inclusive approach

  • Smaller-group discussion effective and efficient

  • Inclusion of patient and Indigenous perspectives

  • Good communication

What could be improved about the #PartneringForPain workshop?
  • More time for discussion and receiving information earlier

  • Suggest 2 d, as long day for people living with pain

  • More comfortable chairs

  • Round tables for small-group discussion and larger visuals of questions

  • Inclusion of fathers and other clinicians (e.g., social workers)

What else would you like us to know about your experience with the #PartneringForPain workshop?
  • Rewarding and empowering experience

  • Good balance between meeting and connecting with others, and achieving pragmatic work

  • Note: SD = standard deviation.

  • * Assessed with the Public and Patient Engagement Evaluation Tool version 2.0.46,47

  • On 5-point Likert scale from 1 (strongly disagree) to 5 (strongly agree).