Demographic characteristics of included patients and family caregivers
| Characteristic | No. (%) of participants* | |
|---|---|---|
| Patients n = 21 | Family caregivers n = 23 | |
| Age, yr, mean ± SD (range) | 48.0 ± 17.6 (20–84) | – |
| Female sex | 8 (38) | 14 (61) |
| Education | ||
| Some high school | 3 (14) | – |
| High school graduate | 2 (10) | – |
| Some university/college (no degree) | 3 (14) | – |
| Bachelor’s degree | 2 (10) | – |
| Other | 3 (14) | – |
| Missing | 8 (38) | – |
| Relationship to patient | ||
| Spouse/common-law | – | 11 (48) |
| Daughter | – | 4 (17) |
| Son | – | 2 (9) |
| Mother | – | 2 (9) |
| Father | – | 2 (9) |
| Sibling | – | 2 (9) |
Note: SD = standard deviation.
↵* Except where noted otherwise.