Table 1:

Panel composition

Field of expertise or group representedNo. of participants
Round 1Round 2Round 3
Health care professional171615
 Gynecologist and obstetrician4315
 Genetic counsellor333
 Medical geneticist223
Social science and humanities researcher171714
Patients or disability rights advocate*171614
 Association promoting social values666
 Association specific to Down syndrome444
 Association specific to an other condition210
 Involved in more than one association222
 Not affiliated to any association332
Cultural or religious community advocate1096
 First Nations100
  • * We chose not to report the names of affiliated associations to protect the privacy of participants.