Table 1:

Panel composition

Field of expertise or group representedNo. of participants
Round 1Round 2Round 3
Health care professional171615
 Gynecologist and obstetrician4315
 Genetic counsellor333
 Neonatalogist333
 Medical geneticist223
 Midwife111
 Nurse122
 Pediatrician111
 Other221
Social science and humanities researcher171714
 History444
 Law332
 Bioethics222
 Sociology111
 Anthropology110
 Philosophy110
 Other555
Patients or disability rights advocate*171614
 Association promoting social values666
 Association specific to Down syndrome444
 Association specific to an other condition210
 Involved in more than one association222
 Not affiliated to any association332
Cultural or religious community advocate1096
 Islam332
 Christianity222
 Judaism221
 First Nations100
 Other221
Total615849
  • * We chose not to report the names of affiliated associations to protect the privacy of participants.