RT Journal Article
SR Electronic
T1 Priorities for peer support delivery among adults living with chronic kidney disease: a patient-oriented consensus workshop
JF CMAJ Open
JO CMAJ
FD Canadian Medical Association
SP E736
OP E744
DO 10.9778/cmajo.20220171
VO 11
IS 4
A1 Meghan J. Elliott
A1 Maoliosa Donald
A1 Janine Farragher
A1 Nancy Verdin
A1 Shannan Love
A1 Kate Manns
A1 Brigitte Baragar
A1 Dwight Sparkes
A1 Danielle Fox
A1 Brenda R. Hemmelgarn
YR 2023
UL http://www.cmajopen.ca/content/11/4/E736.abstract
AB Background: Peer support can address the informational and emotional needs of people living with chronic kidney disease (CKD) and enable self-management. We aimed to identify preferences and priorities for content, format and processes of peer support delivery for patients with non-dialysis CKD and their loved ones.Methods: Using a patient-oriented research approach, we conducted a half-day, virtual consensus workshop with stakeholder participants from across Canada, including patients, caregivers, peer mentors and clinicians. Using personas (fictional characters), participants discussed and voted on preferences for delivery of peer support across format, content and process categories. We analyzed transcripts from small- and large-group discussions inductively using content analysis.Results: Twenty-one stakeholders, including 9 patients and 4 caregivers, participated in the workshop. In the voting exercise on format, participants prioritized peer mentor matching, programming for both patients and caregivers, and flexible scheduling. For content, participants prioritized informational and emotional support focus, and for process, they prioritized leveraging kidney care programs and alternative sources (e.g., social media) for promotion and referral. Analysis of workshop transcripts complemented prioritization results and emphasized tailoring of peer support delivery to accommodate the diversity of people living with CKD and their support needs. This concept was elaborated in 3 themes, namely alignment of program features with needs, inclusive peer support options and multiple access points.Interpretation: We identified preferences for peer support delivery for people living with CKD and underscore the importance of tailored, flexible programming in this context. Findings could be used to develop, adapt or study CKD-focused peer support interventions.