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Research

Pediatric palliative care in Canada in 2012: a cross-sectional descriptive study

Kimberley Widger, Dawn Davies, Adam Rapoport, Christina Vadeboncoeur, Stephen Liben, Amrita Sarpal, Simone Stenekes, Claude Cyr, Lysanne Daoust, Marie-Claude Grégoire, Marli Robertson, Heather Hodgson-Viden, Julie Laflamme and Harold Siden
October 11, 2016 4 (4) E562-E568; DOI: https://doi.org/10.9778/cmajo.20160054
Kimberley Widger
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Dawn Davies
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Adam Rapoport
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Christina Vadeboncoeur
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Stephen Liben
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Amrita Sarpal
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Simone Stenekes
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Claude Cyr
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Lysanne Daoust
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Marie-Claude Grégoire
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Marli Robertson
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Heather Hodgson-Viden
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Julie Laflamme
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Harold Siden
Lawrence S. Bloomberg Faculty of Nursing (Widger), University of Toronto; The Hospital for Sick Children (Widger, Rapoport), Toronto, Ont.; John Dossetor Health Ethics Centre (Davies), University of Alberta; Stollery Children's Hospital (Davies), Edmonton, Alta.; Departments of Paediatrics and of Family & Community Medicine (Rapoport), University of Toronto, Toronto, Ont.; Children's Hospital of Eastern Ontario (Vadeboncoeur), Ottawa, Ont.; Montreal Children's Hospital, McGill University Health Centre (Liben), Montréal, Que.; Children's Hospital London Health Sciences Centre (Sarpal), London, Ont.; Winnipeg Regional Health Authority (Stenekes), Winnipeg, Man.; Centre hospitalier universitaire de Sherbrooke (Cyr), Sherbrooke, Que.; Centre hospitalier universitaire Sainte-Justine (Daoust), Montréal, Que.; IWK Health Centre (Grégoire), Halifax, NS; University of Calgary (Robertson); Rotary/Flames House (Robertson), Calgary, Alta.; University of Saskatchewan; Royal University Hospital (Hodgson-Viden), Saskatoon, Sask.; Centre hospitalier universitaire de Québec (Laflamme), Québec, Que.; Child & Family Research Institute (Siden); Canuck Place Children's Hospice (Siden), Vancouver, BC.
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Online Appendices

Files in this Data Supplement:

  • Appendix 1: List of variables collected
  • Appendix 2: Program staffing (Full Time Equivalents FTE) and number of children receiving care in 2002 versus 2012
  • Reviewer Comments
  • Original Submission
  • STROBE Statement

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