Topic* |
Understanding chronic kidney disease | High | Basic information about chronic kidney disease
What causes chronic kidney disease Impact of chronic kidney disease and how to manage it (lifestyle, well-being) How to assess risk of progression Understanding estimated glomerular filtration rate
| 20 |
Basic information about kidneys and what they do | 17 |
How to slow progression | 15 |
Medium | Where to find credible and reliable information on chronic kidney disease | |
Low | How to prevent chronic kidney disease | 2 |
Timing of symptoms in relation to chronic kidney disease progression | 1 |
Learning new skills to manage chronic kidney disease | 1 |
Fertility and family planning | 0 |
Diet | High | Reliable information on diet and nutritional requirements | 18 |
Dietary changes required for chronic kidney disease and comorbidities (e.g., diabetes) | 17 |
Renal-friendly/-unfriendly foods (what to eat/not to eat) | 15 |
Medium | How to read food labels | 7 |
Meal planning (e.g., how to make modifications) | 7 |
Low | Diet-tracking tools | 2 |
How to identify renal-friendly food that is affordable | 2 |
Cooking classes | 0 |
Symptoms | High | How to manage symptoms and when to seek help | 18 |
What the symptoms of chronic kidney disease are, what causes them, what to expect as chronic kidney disease progresses | 14 |
When to act on symptoms, severity of symptoms | 12 |
Considerations for comorbidities and impact of treatment for other conditions | 11 |
Medium | Fatigue | 6 |
Symptom expectations | 6 |
Low | How to slow progression of symptoms | 2 |
Lack of symptoms (“silent disease”) | 1 |
Medications | High | Common medications for chronic kidney disease, adverse effects to watch for and how to manage them | 22 |
Indications for medications | 20 |
Cost, coverage, insurance for medications | 18 |
Medium | Long-term use of medications and implications | 4 |
Low | Medication interactions | 3 |
Interactions between Western and alternative therapies | 2 |
How to facilitate pill-taking | 0 |
Medication diary | 0 |
Mental and physical health | High | Recognition of mental health issues as a symptom of chronic kidney disease | 19 |
Support for patients and broader circle (e.g., family, caregivers) for mental and physical wellness | 13 |
Recognition of cultural sensitivity | 11 |
Screening for depression | 10 |
Addressing how to adjust to “new normal” | 10 |
Medium | Resources and support for mental health issues (e.g., anxiety, guilt, coping with burden) | 5 |
Finances | High | Affordability and accessibility of medications, equipment, food | 23 |
Financial coverage and resources | 22 |
Long-term financial planning | 21 |
Low | Budgeting | 2 |
Travel | High | Travel limitations | 18 |
Travel insurance | 17 |
Accessing health care abroad | 14 |
What to bring on work/leisure trips | 10 |
Medium | Medications for travel/letter of support | 7 |
Travel to appointments and how to minimize travel burden | 5 |
Low | Support for caregiver travel | 1 |
Volunteer drivers and supported transit | 1 |
Work and school | High | Accommodating work/school environment | 18 |
Integrating diet and medications into lifestyle (e.g., work and school environment) | 16 |
Supports and considerations for returning to work/school | 15 |
Restrictions for work/school | 11 |
Low | Arranging for respite | 1 |
Features of electronic health tool | High | Pictures and visuals | 15 |
Ability to enter and track health information | 13 |
Accessible/“on-the-go” access to information | 12 |
Links to resources | 12 |
Ability to interact virtually with health care team | 12 |
Access to electronic personal health information | 12 |
Medium | Matrix style (ability to drill down to more detailed information) | 9 |
Simple tool | 9 |
Ability to build own profile | 9 |
Quick tips and tools | 8 |
Online chat group | 8 |
Caregiver section | 7 |
Multimedia format (multiple features) | 7 |
Regular updates | 6 |
Reminders, alerts | 6 |
Secure messaging | 6 |
Privacy considerations | 5 |
Low | Multiple languages | 4 |
Mobile app | 3 |
Information organized by disease stage | 3 |
Different sensory needs (e.g., visual, hearing) acknowledged | 2 |
Reliable, credible information | 2 |
Ability to download or save content | 2 |
Searchable feature | 2 |
Personal/patient stories | 2 |
Stage of readiness to learn considered | 2 |
Virtual coach | 2 |
Tinder-like application | 1 |
Favourites option | 1 |
Print feature | 1 |
Forum to submit questions | 1 |
Filters | 1 |
Podcasts/audio files | 1 |
Hierarchical format | 0 |
Ability to share calendar | 0 |
Decision aids | 0 |
Help feature (tool-use training) | 0 |