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Research

Exploring the approaches of non-Indigenous researchers to Indigenous research: a qualitative study

Alexandra Kilian, Tyee Kenneth Fellows, Ryan Giroux, Jason Pennington, Ayelet Kuper, Cynthia R. Whitehead and Lisa Richardson
August 25, 2019 7 (3) E504-E509; DOI: https://doi.org/10.9778/cmajo.20180204
Alexandra Kilian
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
BHSc
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Tyee Kenneth Fellows
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MSc
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Ryan Giroux
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MD BA
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Jason Pennington
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MD MSc
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Ayelet Kuper
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MD DPhil
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Cynthia R. Whitehead
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MD PhD
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Lisa Richardson
Faculty of Medicine (Kilian, Fellows), University of Toronto; Wilson Centre (Kilian, Kuper, Whitehead, Richardson); Office of Indigenous Medical Education (Fellows, Pennington, Richardson), Department of Pediatrics (Giroux) and Division of General Surgery (Pennington), University of Toronto; Division of General Internal Medicine (Kuper), Sunnybrook Health Sciences Centre; Department of Family and Community Medicine (Whitehead), Women’s College Hospital; Department of Medicine (Richardson), University of Toronto, Toronto, Ont.
MD MA
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Abstract

Background: Given the history of unethical research in Indigenous communities, there is often apprehension among Indigenous communities toward research carried out by non-Indigenous researchers. We examined the approaches, experiences and motivations among non-Indigenous researchers at a research-intensive Canadian university conducting research with Indigenous communities to understand approaches to ethical research with Indigenous peoples.

Methods: We performed a critical constructivist qualitative study incorporating decolonizing methodologies. We conducted semistructured interviews with 8 non-Indigenous University of Toronto researchers with a research focus/interest related to Indigenous health between August and October 2017. The interviews were transcribed and thematically analyzed through an iterative process. Shared experiences among the researchers were arranged into primary themes.

Results: We identified 4 primary themes related to the conduct of Indigenous research by non-Indigenous researchers: 1) relationships with communities are foundational to the research process, 2) non-Indigenous researchers experience a personal self-reflective journey grounded in reconciliation, allyship and privilege, 3) accepted knowledge frameworks in Indigenous research are familiar to most but are inconsistently applied and 4) institutions act as barriers to and facilitators of ethical conduct of Indigenous research. Four core principles — relationships, trust, humility and accountability — unified the primary themes.

Interpretation: We identified strengths and areas for improvement of current policies and practices in Indigenous research by non-Indigenous researchers. Although non-Indigenous researchers value relationships, and their research is informed by Indigenous knowledge, institutional barriers to implementing recommended elements exist, and certain policy statements such as the Tri-Council Policy Statement 2 lack applicability to secondary data analysis for some non-Indigenous researchers.

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CMAJ Open: 7 (3)
Vol. 7, Issue 3
1 Jul 2019
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Exploring the approaches of non-Indigenous researchers to Indigenous research: a qualitative study
Alexandra Kilian, Tyee Kenneth Fellows, Ryan Giroux, Jason Pennington, Ayelet Kuper, Cynthia R. Whitehead, Lisa Richardson
Jul 2019, 7 (3) E504-E509; DOI: 10.9778/cmajo.20180204

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Exploring the approaches of non-Indigenous researchers to Indigenous research: a qualitative study
Alexandra Kilian, Tyee Kenneth Fellows, Ryan Giroux, Jason Pennington, Ayelet Kuper, Cynthia R. Whitehead, Lisa Richardson
Jul 2019, 7 (3) E504-E509; DOI: 10.9778/cmajo.20180204
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