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Research

The top research questions asked by people with lived depression experience in Alberta: a survey

Lorraine J. Breault, Katherine Rittenbach, Kelly Hartle, Robbie Babins-Wagner, Catherine de Beaudrap, Yamile Jasaui, Emily Ardell, Scot E. Purdon, Ashton Michael, Ginger Sullivan, Aakai’naimsskai’piiaakii Sharon Ryder Unger, Lorin Vandall-Walker, Brad Necyk, Kiara Krawec, Elizabeth Manafò and Ping Mason-Lai
September 28, 2018 6 (3) E398-E405; DOI: https://doi.org/10.9778/cmajo.20180034
Lorraine J. Breault
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Katherine Rittenbach
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Kelly Hartle
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Robbie Babins-Wagner
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Catherine de Beaudrap
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Yamile Jasaui
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Emily Ardell
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Scot E. Purdon
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Ashton Michael
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Ginger Sullivan
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Aakai’naimsskai’piiaakii Sharon Ryder Unger
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Lorin Vandall-Walker
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Brad Necyk
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Kiara Krawec
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Elizabeth Manafò
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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Ping Mason-Lai
Department of Psychiatry (Breault, Rittenbach, Hartle, Sullivan), Faculty of Medicine & Dentistry, University of Alberta; Faculty of Pharmacy and Pharmaceutical Sciences (Necyk), University of Alberta, Edmonton, Alta.; Calgary Counselling (Babins-Wagner); Hotchkiss Brain Institute (Jasaui), University of Calgary; The Alex Community Health Centre (Ardell); Explorror (Michael), Calgary, Alta.; Parkland School Division (de Beaudrap), Spruce Grove, Alta.; Shinah House Foundation (Ryder Unger), Lethbridge, Alta.; Alberta Health Services (Purdon), Edmonton, Alta.; Athabasca University (Krawec, Manafò, Mason-Lai), Athabasca Alta.; Edmonton, Alta. (Vandall-Walker)
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    Figure 1:

    Alberta’s top 11 depression research priorities.

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    Table 1:

    Survey participant demographic characteristics and experience with depression

    Characteristic/experienceNo. (%) of respondents
    n = 445
    Type of participant
    Person with depression283 (63.6)
    Family member or caregiver of person with depression74 (16.6)
    Health care professional caring for people with depression28 (6.3)
     Counsellor3 (10.7)
     Nurse7 (25.0)
     Psychiatrist1 (3.6)
     Psychologist4 (14.3)
     Social group worker1 (3.6)
     Other12 (42.8)
    Clinician treating depression14 (3.1)
    Other*46 (10.3)
    Sex
    Male88 (19.8)
    Female354 (79.6)
    Did not report3 (0.7)
    Age group, yr
    18–2976 (17.1)
    30–39108 (24.3)
    40–49116 (26.1)
    50–5995 (21.3)
    60–6940 (9.0)
    70–798 (1.8)
    ≥ 802 (0.4)
    Primary place of residence
    Edmonton144 (32.4)
    Calgary141 (31.7)
    Elsewhere160 (36.0)
    Immigrant status (between 2011 and 2016)10 (2.2)
    Ethnic origin†
    Canadian287 (64.5)
    European150 (33.7)
    East European29 (6.5)
    Métis25 (5.6)
    North American16 (3.6)
    First Nation13 (2.9)
    Asian11 (2.5)
    South American6 (1.3)
    African5 (1.1)
    Middle Eastern5 (1.1)
    Central American3 (0.7)
    Inuit2 (0.4)
    Other6 (1.3)
    Prefer not to say5 (1.1)
    Experience with depression (n = 420)
    Lifetime119 (28.3)
    > 5 yr159 (37.8)
    3–5 yr39 (9.3)
    1–2 yr28 (6.7)
    < 1 yr12 (2.8)
    New diagnosis of depression4 (1.0)
    Other15 (3.6)
    Recovered from depression44 (10.5)
    No. of months in year with depression experience (n = 352)
    10–12164 (46.6)
    7–932 (9.1)
    4–662 (17.6)
    ≤ 394 (26.7)
    • ↵* Nurse educator, certified diabetes educator, bail supervisor, clinical exercise physiologist, clinical scientist, dietitian, holistic nutritionist, counsellor (intern), life coach, massage therapist, medical laboratory technologist, neurologist, paramedic, occupational therapist, registered acupuncturist, senior quality improvement consultant.

    • ↵† Some participants self-identified in more than 1 group.

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    Table 2:

    Summary of process and outputs of the Alberta Depression Research Priority Setting Project for determining top 11 depression research questions

    ProcessOutput
    —
    • 14-member Steering Committee formed

    Step 1: Data gathering (participant online and paper survey), August–December 2016
    • 445 respondents (from Alberta only)

    • 1270 questions and comments on depression received

    Step 2: Question analysis and review (Steering Committee), August–December 2016
    • 350 questions removed that were submitted by participants residing outside Alberta from how many respondents?

    • 724 questions removed owing to duplication

    • 196 questions reformulated into PICO (population, intervention, comparator, outcome) research question format14 and refined (e.g., removed jargon)

    • Short list of 66 research questions across 7 categories went forward for final priority setting (in order: diagnosis and treatment; society, culture and environment; medication, biology and physiology; child and youth; access, service, funding and policy; training and education; and family and behaviour)

    Step 3: Question rating (participant online survey), 1 wk in June 2017
    • 49 participants rated 66 research questions (through online survey)

    • 25 medium- to high-priority questions (most commonly asked) identified

    Step 4: Question prioritization (in-person participant workshop), 1 d in June 2017
    • 20 participants prioritized 11 research questions (3 facilitators, 3 Patient Engagement Platform members and 2 observers attended and supported workshop but did not participate in ranking)

    • 14 remaining questions not selected in the top 11 were deemed worthy of consideration for future depression research

    Step 5: Knowledge synthesis (Patient Engagement Platform and knowledge translation), July–October 2017
    • 25 rapid reviews of depression research questions conducted

    Step 6: Knowledge translation (Patient Engagement Platform and knowledge translation), November 2017–January 2018 and ongoing
    • Dissemination and knowledge mobilization opportunities

    • Public report16 launched to media January 2018

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The top research questions asked by people with lived depression experience in Alberta: a survey
Lorraine J. Breault, Katherine Rittenbach, Kelly Hartle, Robbie Babins-Wagner, Catherine de Beaudrap, Yamile Jasaui, Emily Ardell, Scot E. Purdon, Ashton Michael, Ginger Sullivan, Aakai’naimsskai’piiaakii Sharon Ryder Unger, Lorin Vandall-Walker, Brad Necyk, Kiara Krawec, Elizabeth Manafò, Ping Mason-Lai
Jul 2018, 6 (3) E398-E405; DOI: 10.9778/cmajo.20180034

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The top research questions asked by people with lived depression experience in Alberta: a survey
Lorraine J. Breault, Katherine Rittenbach, Kelly Hartle, Robbie Babins-Wagner, Catherine de Beaudrap, Yamile Jasaui, Emily Ardell, Scot E. Purdon, Ashton Michael, Ginger Sullivan, Aakai’naimsskai’piiaakii Sharon Ryder Unger, Lorin Vandall-Walker, Brad Necyk, Kiara Krawec, Elizabeth Manafò, Ping Mason-Lai
Jul 2018, 6 (3) E398-E405; DOI: 10.9778/cmajo.20180034
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