Identifying needs for self-management interventions for adults with CKD and their caregivers: a qualitative study
…, CA Large, CL Large, B Waldvogel, D Sparkes… - American Journal of …, 2019 - Elsevier
Rationale & Objective Fostering the ability of patients to self-manage their chronic kidney
disease (CKD), with support from caregivers and providers, may slow disease progression and …
disease (CKD), with support from caregivers and providers, may slow disease progression and …
[HTML][HTML] A web-based self-management support prototype for adults with chronic kidney disease (my kidneys my health): co-design and usability testing
…, B Waldvogel, M Delgado, D Sparkes… - JMIR formative …, 2021 - formative.jmir.org
Background Supporting patients to self-manage their chronic kidney disease (CKD) has
been identified as a research priority by patients with CKD and those who care for them. Self-…
been identified as a research priority by patients with CKD and those who care for them. Self-…
Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop
…, B Waldvogel, ML Delgado, D Sparkes… - … Open Access Journal, 2019 - cmajopen.ca
Background: Electronic health (e-health) tools may support patients’ self-management of
chronic kidney disease. We aimed to identify preferences of patients with chronic kidney …
chronic kidney disease. We aimed to identify preferences of patients with chronic kidney …
Integrating risk-based care for patients with chronic kidney disease in the community: study protocol for a cluster randomized trial
Background: A risk-based model of care for managing patients with chronic kidney disease (CKD)
using the Kidney Failure Risk Equation (KFRE) has been successfully integrated into …
using the Kidney Failure Risk Equation (KFRE) has been successfully integrated into …
[HTML][HTML] Storytelling for impact: the creation of a storytelling program for patient partners in research
…, T Atkinson, M Beaucage, L Stalker, D Sparkes… - Research Involvement …, 2023 - Springer
Storytelling is a powerful means to evoke empathy and understanding among people. When
patient partners, which include patients, family members, caregivers and organ donors, …
patient partners, which include patients, family members, caregivers and organ donors, …
Program report: Can-SOLVE CKD Network presents an inclusive method for developing patient-oriented research tools
…, L Franson, E Bernstein, D Sparkes… - … Journal of Kidney …, 2022 - journals.sagepub.com
Purpose of program: Given the growing interest in patient-oriented research (POR) initiatives,
there is a need to provide relevant training and education on how to engage with patients …
there is a need to provide relevant training and education on how to engage with patients …
The Canadian Glomerulonephritis Registry (CGNR) and translational research initiative: rationale and clinical research protocol
…, DD Bush, B MacLaren, D Sparkes… - … Journal of Kidney …, 2022 - journals.sagepub.com
Background: Glomerulonephritis (GN) is a leading cause of kidney failure and accounts for
20% of incident cases of end-stage kidney disease (ESKD) in Canada annually. Reversal of …
20% of incident cases of end-stage kidney disease (ESKD) in Canada annually. Reversal of …
Content and quality of websites for patients with chronic kidney disease: an environmental scan
…, S Straus, G Herrington, D Sparkes… - Canadian journal of …, 2019 - journals.sagepub.com
Background: Although numerous websites for patients with chronic kidney disease (CKD)
are available, little is known about their content and quality. Objective: To evaluate the quality …
are available, little is known about their content and quality. Objective: To evaluate the quality …
Patient perspectives on integrating risk prediction into kidney care: opinion piece
D Sparkes, L Lee, B Rutter… - … Journal of Kidney …, 2022 - journals.sagepub.com
Although Chronic Kidney Disease is common, only a relatively small proportion of individuals
will reach kidney failure requiring dialysis or transplantation. Validated risk equations …
will reach kidney failure requiring dialysis or transplantation. Validated risk equations …
Development and preliminary psychometric testing of an adult chronic kidney disease self-management (CKD-SM) questionnaire
…, B Waldvogel, D Sparkes… - … Journal of Kidney …, 2021 - journals.sagepub.com
Background: Self-management focused interventions to slow chronic kidney disease (CKD)
progression are increasingly common. However, valid self-report instruments to evaluate the …
progression are increasingly common. However, valid self-report instruments to evaluate the …